Ivan and Charika Corea & the Autism Awareness Campaign
A massive Autism Awareness Campaign was
launched in Colombo, Sri Lanka by parents and carers Ivan and Charika Corea.
Ivan Corea is a distinguished old boy of S.Thomas' College, Mount Lavinia, he
was nominated in 1981 for the 'United Nations Media Peace Prize in London in
1981, the first Sri Lankan ever to receive a nomination. He has campaigned
passionately for people with autism in Sri Lanka and in the United Kingdom. Ivan
and Charika Corea's campaign in the United Kingdom enjoys the backing of the
British Prime Minister Tony Blair, the Leader of the Opposition Michael Howard,
the Leader of the Liberal Democrats Charles Kennedy and parliamentarians of all
parties in the Palace of Westminster.
According to international experts, there are 30,000 autistic people in the
island of Sri Lanka, however there is no data collection so the figure could be
much higher.
Autism/pervasive developmental disorder refers to a whole group of disorders
characterised by delays in the development of multiple basic functions including
socialisation and communication.
Symptoms of PDD include severe communication problems such as understanding
language; difficulty to relating to people, objects and events, unusual play
with toys and other objects; difficulty with changes in routine or familiar
surroundings and repetitive body movements or patterns.
Autism, the experts suggest, is a brain disorder characterised by impaired
social interaction and communication skills and limited activities and interests
is the most characteristic and best studied PDD.
Other types of PDD are Asperger's syndrome, Rett's Syndrome,childhood
disintegrative disorders and others.
Autism is a neuro- developmental disorder - all of us have neurones in our
brains to process thought,they need to fire in the correct order - in the brains
of an autistic child or adult they don't fire at all or they just misfire.
That is why you cannot give an autistic child complex commands.Everything has to
be kept well and truly simple.
As in other parts of the world, including the United Kingdom, parents, carers
and autists are struggling to access public services in health, education,
specialist speech therapy and respite care in Sri Lanka.
What has happened in the past is that these children and adults have either been
institutionalised or they have been kept at home. The problem is understanding.
Parents and carers have no real information, they don't know their rights, there
is no real help or support with only one or two schools who cater to children
with special educational needs.
We commend Chitra Lane School in Colombo who are helping autistic children -
they have some expertise where autism is concerned including access to speech
therapy. The Sri Lankan Government needs to replicate the Chitra Lane School
experience, right across the island.
Autism is a time bomb waiting to happen in Sri Lanka and the Prime Minister
Ranil Wickremesinghe and his UNF Government must take action in order to help
and support the Autistic Community in Sri Lanka.
Autism is on the increase - even in the island of Sri Lanka. If there is a
massive increase in numbers of autistic children will the the government be
ready to cope with such an increase?Would service providers be able to
provide public services?
Support for the Autism Awareness Campaign came from a distinguished Sri Lankan,
Niranjan Deva-Aditiya MEP and a member of the highly influential European Union
Health Committee.
The European Union are supporting the Autism Awareness Campaign - 2003 is the
European Year for People with Disabilities. Nirj Deva. met with Ivan and Charika
Corea in Colombo and pledged his whole hearted support.
Autism is a very serious educational and health issue not only in Sri Lanka but
also in Europe where there has been a rise in numbers of people with Autism.
Ivan and Charika Corea appraised many people in Sri Lanka about the crying needs
of the Autistic Community from Ministers of the Sri Lankan Government,
parliamentarians of all parties at Kotte, influential businessmen and women
including the dynamic Managing-Director of Odels - Mrs. Otara Chandiram. The
Odel Foundation are backing the Chitra Lane School who enrol autistic children
and children with special educational needs. The Chitra Lane School is one of
only a handful of schools who deal with autistic children in the whole of Sri
Lanka.
Autism Awareness ribbons were also presented to Sanath Jayasuriya, Sri Lanka's
leading batsman at Lords Cricket Grounds in London. Sanath was informed about
the massive Autism Awareness Campaign and he has met with Ivan, Charika and
Charin Corea on several occasions in London and in Essex.
One of Sri Lanka's leading media personalities, Dr. Vijaya Corea former
Director-General of the Sri Lanka Broadcasting Corporation (now of Peace For All
Ministries in Colombo) also supports the Autism Awareness Campaign.
On a recent visit to London, Dr. Vijaya Corea learnt about autism and how this
condition affects families.
We welcome the new Disability Legislation in Sri Lanka and the new Disability
Policies launched by the UNF Government. We were also delighted to hear the
wonderful debate in parliament in Kotte conducted by members of parliament of
all parties who pledged their support to all people with disabilities.
We urge parliamentarians in Kotte to debate the whole issue of Autism and the
crying needs of the Autistic Community in Sri Lanka - it is now a very serious
health and education issue facing the nation.
Speaking in Colombo, Ivan Corea said: 'Our recommendations to Prime Minister
Ranil Wickremesinghe and the UNF Government:
To set up and fund an AUTISM FOUNDATION in Colombo - which will give help and
support to parents, carers and autists in Sri Lanka; undertake research into the
causes of autism in Sri Lanka; help with the dissemination of information on
Autism and Asperger's Syndrome in English, Sinhala and Tamil; provide advocacy
services for parents, carers and autists.
To launch a data collection project right across the island.
To set up an AUTISM COMMITTEE consisting of health, education, social services
professionals, the voluntary sector/charities/NGOs - joint working and joined up
thinking is absolutely crucial for all autistic people, they can also look at
good practice and make recommendations.
To introduce tough new legislation in parliament similar to the Disabilities
Discrimination Act in the United Kingdom to protect the rights of all autistic
people in Sri Lanka; introduce new employment laws giving access to the world of
work.
Introduce a special examination and a special qualificiation for autistic people
who may or may not be entered for GCEs, A levels ; introduce special assessments
for autistic children who are in mainstream schools.
Open more Special Schools wherever the need arises.
Encourage inclusion in mainstream schools - both in the Government Sector and in
private schools.
Introduce compulsory disability training for all school principals and staff.
Introduce disability awareness - including autism to all mainstream school
children.
Introduce disability units including a study on autism in all teacher training
courses including teacher training degree courses in universities.
Appoint a Disabilities Minister who will also look at the needs of autistic
children and adults across the Disability Spectrum.
Launch an Autism Awareness Week in Sri Lanka.
We recommend that the Ministers of Health and Education visit other countries
such as the UK and liaise with Ministers looking at how these countries provide
public services for autistic people also looking at good practice in other
countries.
Request funding and expertise from other countries to help set up the
Autism Foundation and Autism Projects in Sri Lanka.
Organise an Autism Conference in 2004 in Colombo aimed at raising awareness
through seminars, workshops - for health, education and social services
professionals and the voluntary sector - we are prepared to bring a team of
experts from the United Kingdom- provided the Government of Sri Lanka funds
their visit.
Launch a recruitment and retention campaign to attract special educational needs
teachers and specialist speech therapists right across Sri Lanka.
Encourage new ways of thinking where Disabilities and Autism is concerned -
education from infant school to univesity is a key area, employment is another
area, we also need a debate on Autism and the Elderly.
We urge the Ministry of Health to introduce the CHAT system of early diagnosis
for autism - initiated by world autism expert Dr. Simon Barry Cohen of Cambridge
University.
We urge the Ministry of Education to develop educational strategies in
mainstream schools for children and young people with Autism and Asperger's
Syndrome.
We appeal to the Government of Sri Lanka to provide more funding for public
services in health, education, specialist speech therapy and respite care for
people with Autism and Asperger's Syndrome.
We urge the Prime Minister, Ranil Wickremesinghe to make a policy statement on
Autism and reach out to the Autistic Community in Sri Lanka.
Now is the time for action on Autism in Sri Lanka,' said Ivan Corea.
Autism Awareness Campaign in Sri Lanka
please access the website: http://autism_srilanka.tripod.com/autismcampaignsrilanka